Jenn McNary, a mother of six from Saxtons River, Vt., is desperate.
Both her boys have Duchenne muscular dystrophy, but only her 10-year-old Max has access to a wonder drug that appears to be reversing the symptoms of this deadly disease.
His 13-year-old brother Austin is languishing in a wheelchair while Max has been able to take the drug eteplirsen through a highly successful clinical trial.
After 60 weeks on an IV infusion, Max was able to participate in a three-mile Halloween walk.
"It's the first time ever -- he's never been able to walk that far. He's always gone with a wheelchair, even as a toddler," said McNary, 32. "He actually doesn't look like a Duchenne kid at all. And his balance is great."
"People all over the world are calling it a miracle," she said of the drug.
Now, McNary has written petitioned the Food and Drug Administration to give accelerated approval of the medication, the fastest way to help Austin and other boys with the disease. Read more at ABC News
Read more about Max and Austin and get the petition to help!
